Charlie Godfrey

Charlie is 7 years old. He suffers with Lennox Gastaut Syndrome which is a rare and extremely hard to treat Epilepsy. He also has Global Development Delay with the mind of a 2-year-old. Charlie has Autism and also has exercise induced Asthma. He can have anything from 1-50 or more seizures a day and often […]

Chloe’s Story

Chloe wasn’t expected to live beyond three weeks and now she’s six and confounding them all she has a diagnosis of swan syndrome without a name as she doesn’t match anything genetically. Chloe also has autism low muscle tone bi lateral flat feet and has had surgery for her bowel and now has a mickey […]